Sobi - North America

As a busy civil servant, wife and mother, Vanda lives an active lifestyle. She is also living with adult-onset Still’s disease, a rare, auto-inflammatory condition. Vanda accepts that aspects of her health are no longer under her control. Instead, she focuses on what she can do to get better physically, which helps with her mental healing too. Read Vanda’s story: https://bit.ly/3XkgNlj #AutoinflammatoryAwarenessMonth

Today we celebrate #WomensEqualityDay with our women leaders, partners, and patients. Beyond today, we’ll continue honoring our commitment to developing, advancing and retaining women alongside the powerful efforts of our women’s resource group, LEAD.

As our Vice President of Customer Experience, Insights and Operations Kate Thota knows the importance of working with agility. Although navigating change is never easy, Kate believes that being candid about your goals and articulating an action plan can set yourself up for success. Read more tips from Kate on how to embrace change: https://bit.ly/4cOwDcB

#DYK autoinflammatory disease is different from autoimmune disease? While they both are disorders that occur when the immune system damages healthy cells, they have different causes and characteristics. Autoinflammatory diseases are caused by innate immunity problems, while autoimmune diseases originate in the adaptive immune system, a specialized defense that develops throughout life. #AutoinflammatoryDiseaseAwarenessMonth

When our own Leah Kennedy MPreH became a mother, her connection to her work changed. She began to understand the challenges and hardships the patient care team faces. At Sobi, Leah uses her #rarestrength to make a positive impact on all patients she encounters, because she knows that every step in a patient’s rare disease journey matters. Read more about Leah’s reason: https://bit.ly/3yNAoAN

Have you listened to “Investigating HLH”, our new podcast series exploring hemophagocytic lymphohistiocytosis (HLH)? As we continue the conversation on HLH, tell us which topics you would like to learn about in future episodes. Select a topic(s) or let us know in the comments below. 

Looking to make a difference in the lives of people with living with #RareDiseases? We’re growing our Immunology team and have several Health Systems Director opportunities available in the United States. Sobi offers a collaborative environment that fosters professional development and the ability to make an impact. Learn more about our current openings and how you can contribute your #RareStrength to our Immunology team. https://bit.ly/4ckZaql

As General Counsel for Sobi North America, Guled H. Adam deeply understands the importance of authenticity. Read more to learn how the rare strength of authenticity leads to confidence building and can set you and your colleagues up for more success in the workplace. https://bit.ly/3LqAhhn

Are you caught up on the “Investigating HLH” podcast? Adam Narloch, our Thought Leader Liaison National Director and host, held great discussions with HLH experts.   Episode 1: An Introduction to HLH featuring Dr Michelle Hermiston of UCSF Benioff Children’s Hospital Episode 2: Diagnosing HLH featuring Dr Ashish Kumar of Cincinnati Children’s Hospital and Dr Scott Canna of Children’s Hospital of Philadelphia Episode 3: Treating HLH featuring Dr Saara Kaviany of Comer Children’s Hospital and Dr Blachy Dávila Saldaña of Children’s National Hospital Listen to Episodes 1-3 here https://bit.ly/3VYo6NO  

Wishing our colleagues, patients and partners a happy and safe Independence Day holiday!