As part of the Prevent Blindness TED Art Therapy program, the TED Community is gifted an art therapist and session every other month - for all who have historically participated in this wonderful 8-week program. On Saturday, art therapist Emma directed us to make a kaleidoscope artwork as a way to look at our world from a different perspective. The experience was magical! Prevent Blindness is currently accepting applications for the fall session of TED Art Therapy. We highly recommend!! https://lnkd.in/g3xVg2js
TED Community Organization
Non-profit Organizations
Pacific Grove, CA 68 followers
We Educate. We Support. We Connect. All those affected by Thyroid Eye Disease (TED). You'll never walk alone!
Über uns
As a dedicated Thyroid Eye Disease (TED) 501c3 nonprofit, our vision and quest is to ensure that no one need ever walk alone through the arduous and often isolating TED journey. To this end, we provide education, support, and connection for all who are affected by TED. The TED Community Organization is comprised of patients, caregivers, medical professionals, and individuals who advocate for those dealing with Thyroid Eye Disease (TED). In essence, we are a community of individuals who have the shared living experience of TED.
- Website
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https://tedcommunity.org
External link for TED Community Organization
- Industrie
- Non-profit Organizations
- Größe des Unternehmens
- 2-10 Mitarbeiter
- Hauptsitz
- Pacific Grove, CA
- Typ
- Nonprofit
- Gegründet
- 2022
Standorte
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Primäre
Wegbeschreibung erhalten
Pacific Grove, CA 93950, US
Employees at TED Community Organization
Aktualisierungen
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Please share this great event with all who are affected by TED. Patients, advocates, and family members welcomed!! Please visit Dr. Kahana's Graves & TED Education page for further information: https://lnkd.in/g5k5yE-X
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Our TED Community is growing strong through the care and support of our friends and partners!
Heartfelt thanks to our partner at Immunovant for sharing about the TED Community, via my story (Christine), during Graves Disease Awareness month. This article appeared throughout the country in major to minor media outlets. This is a tremendous boost to our outreach efforts! https://lnkd.in/gA8Kzejj
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HIGHLY RECOMMEND THIS GREAT PROGRAM!!
Our 8-week Prevent Blindness Art Therapy Program for people with #ThyroidEyeDisease (TED) is back for fall! The program will run between Sept. 26 - Nov. 23 and is available virtually from your home anywhere in the U.S. #PBArtTherapy helps participants express emotions and connect to other people with TED. Learn more and apply today! https://lnkd.in/gx_Dx-yY This program is available at no cost to participants through generous grants from Amgen and Viridian Therapeutics, Inc.
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Graves' Disease Awareness Month Rocks! The TED Community Artists gathered together last Saturday to discuss and create "rock art" that captured the theme of "HOPE" for all those affected by Graves' disease, which includes nearly everyone with thyroid eye disease (TED). The blue rock was painted by Jacque, the director of TED ART, and the gold flowers were painted by Nancy Patterson, the founder of the Graves' Disease & Thyroid Foundation, also a member of the TED Community Organization. Nancy informed us that her GDATF is nearly 35 years strong!!
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Twenty TED Artists. One Collaborative Quilt. With direction from our premier artist, Jacque, we created a collaborative quilt. We were to reflect on the loneliness that so many of us felt prior to finding the TED Community. And to use art to show what the experience of connection means to each of us. This quilt is a testament to the power of community, and friendship to heal, to uplift and to inspire others. Large version https://lnkd.in/gG2m3Ne4 Quilt created at our recent in-person TED Builders Workshop in May 2024.
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An invitation for TED patients and care partners - please share if this will help someone in your life that is dealing with TED. TED Online Peer Support - Join the Conversation Wednesday, June 19th @ 4pm ET, 3pm CT, 1pm PT Please join us for a TED Community Peer Support Meet Up - a heartfelt, uplifting, and solution-oriented conversation about living with thyroid eye disease, TED. Below are the topics for the one-hour meeting that will take place on Zoom, Wednesday, June 19th @ 4pm ET, 3pm CT & 1pm PT. (International participants welcomed!) Get the Zoom link by submitting your email on this page. https://lnkd.in/gNveg4JG TOPICS High & Low. Let’s take a moment to check in with one high and one low that you are currently experiencing. Take Back Your Life! Do you feel like your life has been hi-jacked by TED? Perhaps your confidence level went from an "8" to a "1" with the onset of TED. You may have withdrawn from friends and family. Stopped dating. Or considered pivoting to an online job where you can hide out. Let's talk about it. Children, Cameras & Mirrors No problem? Or have you been challenged by looking in the mirror, the reactions of children if your appearance has been affected by TED … and the ever-present cameras?! Self-Compassion and Care Thinking about TED as an auto-immune, what are ways you can use self-care to encourage your own healing journey? Nutrition, Exercise, Sleep Hygiene, Mental Health practices, for example. On a final note: Community :o) *Adorable photo of Andre, Cynthia and Layla at the TED Builders Workshop in Chicago!
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Reassuring report for TED Patients!!
We know the importance of having long-term data when it comes to treating those living with Thyroid Eye Disease (TED). I'm pleased to see these exploratory findings highlighted this weekend Endocrine Society at ENDO 2024. https://lnkd.in/gnadGrSi
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Thyroid eye disease (TED) is isolating and is often accompanied by feelings of loneliness, profound anxiety and, at times, despair. It is natural to withdraw when one's face becomes disfigured, and many TED patients do. So it took tremendous courage for the 16 TED patients including 2 care partners to travel to Chicago for the TED Community Builders Workshop. Most importantly, we created a safe collaborative space to make this workshop a magical and memorable experience for everyone involved. We recorded the event in photos (link below) and hope you will enjoy our beautiful gallery and participant quotes ... with Love from the TED Community. https://lnkd.in/gn3DZgsH
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Heartfelt thanks to the Amgen Patient Advocacy Team for sponsoring our first ever TED Community Builders Workshop. It was a beautiful experience, life-changing as someone pointed out, to be with each other - sharing ideas, practicing our storytelling skills, creating art together, speaking with Jeff Todd from Prevent Blindness, and participating in a peer-support group. The three days flew by, and according to the summary-evaluations, the event was a "10"! A special shout-out to BJ Viau (and his team = Daniel, Molly, and Maggie + Amy and Matt!!) at Amgen for believing in us and for all of the great work that made this event possible.
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