Sobi Belux

🗣 Are you a healthcare professional involved in treating patients with rare immunological and haematological diseases in Belgium? Have you heard of Sobi Pro yet? With Sobi Pro, we aim to assist you in your practice and with caring for your patients. 🧰 Browse a host of materials and discover useful tools and applications, all designed to empower you and your patients to manage their condition and engage in shared decision-making. 💪 Access practical, educational, clinical and scientific information about Sobi products and the diseases we help tackle. 👉 Register now for full access to Sobi Pro: https://lnkd.in/dS8ff8nz #Healthcare #HealthcareProfessionals #Belgium #SobiPro #ProfessionalHub #RareDiseases #ITP #PNH #Haemophilia #HealthcareInnovation #PatientCare #PatientEngagement #PrecisionMedicine NP-34374

🗣 Sobi brings innovation to patients Koen Kas, healthcare futurist, author, keynote speaker and professor of molecular oncology & digital health at Ghent University, stated at our recent 10th birthday conference on rare disease policy: "In a world that is becoming data-driven, we can provide patients with tools to become more than just healthy, to deal with their life goals, even as a rare disease patient." A statement which we are highly supportive off! Developed by Sobi, the Joint Health InSights tool is such a tool. ⚒️The Joint Health InSights tool lets healthcare professionals interact with immersive 3D joint models. ⚒️It encourages supportive discussions with people living with haemophilia about their unmet needs. ⚒️This and other applications are waiting for healthcare professionals on Sobi Pro, Sobi’s new healthcare professionals’ hub. Discover: ⚒️Innovative tools to improve patient care. 🧰 Information and materials for the management of rare pathologies in immunology and haematology. 👉Get ready to harness the latest in joint health assessment for your patients. Precision care begins with the right tools! Register on to Sobi Pro for full access: https://lnkd.in/dS8ff8nz 🗨️ Comment below to share how Sobi Pro could benefit your practice! #Healthcare #HealthcareProfessionals #Belgium #SobiPro #ProfessionalHub #RareDiseases #ITP #PNH #Haemophilia #HealthcareInnovation #Conference #JointHealth #PrecisionMedicine #PatientCare #PatientEngagement NP-34374

🗣 Are you a healthcare professional involved in treating patients with haemophilia? Have you heard about The Factor Lounge? The Factor Lounge is a series of videos featuring experts in haemophilia. Created to facilitate the dissemination of expert advice on key topics related to haemophilia A and B, the information is presented to you in 3 to 6 minutes, in an interactive format. Make yourself a hot drink and learn from leading haematologists about the latest advancements in the treatment of haemophilia: 🧬 Professor Cedric HERMANS MD PhD FRCP (Lon,Edin) on upgrading people with haemophilia B from on-demand to prophylaxis. 🧬 Doctor Maria Elisa Mancuso on the importance of Factor VIII in treating haemophilia A patients. 🧬 Doctor Steve Austin on the benefits of switching from Short Half-Life to Extended Half-Life Factor VIII. 🧬 Professor Niamh O'Connell on managing haemophilia B patients going through surgery. 🧬 Professor Laffan on the role and implications of extravascular distribution with Factor IX. Register on to Sobi Pro, your professional hub and gateway to a world of resources: 👥 Learn from your peers and unravel the science behind Factor VIII and Factor IX! Sign up and explore this and many other topics: https://lnkd.in/dS8ff8nz 🏷️ Don't forget to tag a colleague who would benefit from this! #Healthcare #HealthcareProfessionals #Belgium #SobiPro #ProfessionalHub #RareDiseases #Haemophilia #ITP #PNH #TheFactorLounge #HealthcareInnovation #PatientCare #PatientEngagement #PrecisionMedicine

🗣 Calling all Healthcare Professionals in Belgium! Sobi proudly presents Sobi Pro, your healthcare hub for rare immunological and haematological diseases. We're excited to introduce Sobi Pro, a private platform meticulously crafted to support you in your practice and to enhance patient care. 💼 Access a curated collection of tools and practical materials tailored to your professional needs. ⤴ Stay informed with clinical and scientific insights about the diseases that we combat together. 👉 Join us today and find inspiration for your approach to care. Register for full access and discover how Sobi Pro can assist you in empowering your patients:  https://lnkd.in/dS8ff8nz 🗨️ Comment below if you're as excited as we are about Sobi Pro! #Healthcare #HealthcareProfessionals #Belgium #SobiPro #ProfessionalHub #RareDiseases #ITP #PNH #Haemophilia #HealthcareInnovation #PatientCare #PatientEngagement #PrecisionMedicine NP-34374

This week it is World Haemophilia Day, we take a moment to stand still and reimagine together with the people living with haemophilia their story and imagine together a world in which even with haemophilia, normalised haemostasis is no longer out of reach. What is normalised haemostasis? Achieving normalised haemostasis happens when factor levels in the blood needed for blood clotting are above 40%. By maintaining normalised haemostasis, it could be possible for people with hemophilia to live a life with less impact on their wellbeing. Watch this educational animation to learn more about normalised haemostasis. #ReimagineYourStory #NormalisedHaemostasis #WorldHaemophiliaDay #WHD2024 * Sobi Belgium is not responsible for the information presented on the Liberate Life website. The information on the Liberate Life website may not be compliant with Belgian regulation.   NP-34277

Today is #WorldHemophiliaDay The 2024 theme of #WHD2024 is “Equitable access for all: recognising all bleeding disorders”. The World Federation of Hemophilia (#WFH) vision of Treatment for All is for a world where all people with inherited bleeding disorders have access to care, regardless of their type of bleeding disorder, gender, age, or where they live. At Sobi, we continue contributing towards a world where everyone with hemophilia has access to diagnosis, treatment, and comprehensive care. With the eventual aim to bring equal levels of protection to all people living with hemophilia. Imagine even normalised hemostasis... #ReimagineYourStory #NormalisedHaemostasis #WorldHemophiliaDay #WHD2024 NP-34277

Going to see your favourite band in person and experiencing the atmosphere of a live concert may not always be possible if you live with haemophilia.   Working with your care team to understand your level of protection against bleeds is a key step to improving your wellbeing. Find out about how others have reimagined their story with haemophilia, here: https://liberatelife.eu/ *. #ReimagineYourStory #NormalisedHaemostasis #WorldHemophiliaDay #WHD2024 * Sobi Belgium is not responsible for the information presented on the Liberate Life website. The information on the Liberate Life website may not be compliant with Belgian regulation. NP-34277

Managing pain and joint health related to haemophilia can impact a child’s ability to take part in everyday activities – such as playing sports with their friends.   But, with tailored support, your child could imagine a story where they play with their friends and take part in sports, whilst living with haemophilia.   Learn more about how others have reimagined a story of living with haemophilia for themselves and their family: https://liberatelife.eu/ *. #ReimagineYourStory #NormalisedHaemostasis #WorldHemophiliaDay #WHD2024 * Sobi Belgium is not responsible for the information presented on the Liberate Life website. The information on the Liberate Life website may not be compliant with Belgian regulation. NP-34277

Also Sobi Belux , as member of Coalition Next Global , was hapily part of this full day of imersion and inspiration together with a variety of partners with a heart for digital health & care! Our personal ambition: finding common grounds and innovations for some of the unmet needs in the rare diseases we help tackle every day. #innovation #AI #ehealthcollective #digitalhealthcare #startups #collaboration #hospitals #transmuralcare #homecare #patientengagement #remotepatientmonitoring #ITP #PNH #immunethrombocytopenia #haemophilia

"To know is to measure. Data collection is important because it allows medicines to be accessible to patients more quickly.”   Greet Van Kersschaever, rare disease advisor in the Cabinet of Belgian Minister of Health Frank Vandenbroucke, knows that good data collection is crucial for innovation in healthcare.   She shared her knowledge on and vision about rare diseases and innovation as a speaker at our conference on rare disease policy. Find out what she had to say! #rarediseases #healthcare #innovation #conference