Muscular Dystrophy Association

Congratulations to CITGO Lemont Refinery on the success of the 28th Annual Muscular Dystrophy Association-CITGO Driving for a Cure Golf Outing! This record-breaking event raised over $904,000 thanks to all of our dedicated sponsors and committee members. Together with our partners at CITGO Petroleum Corporation, we have a community that empowers people through strong connections, creating an environment where overcoming obstacles is not just a hope, but a reality for people living with neuromuscular conditions. We are so grateful to put this funding towards accelerating research and advancing care. Thank you to everyone who participated! #Partnership #Community #Fundraising

On Tuesday, September 17th at 12noon ET we invite you to join Edgewise Therapeutics' Joanne Donovan, Chief Medical Officer, and John Wing, Executive Director of Medical Affairs for a spotlight on Becker muscular dystrophy; an understanding of disease progression, and a potential novel agent to protect muscle. The latest #Becker #MuscularDystrophy natural history data shows that once functional decline begins, individuals with Becker continue on a trajectory to irreversible muscle loss. Edgewise Therapeutics is investigating a novel approach designed to protect muscle in Becker and continues to support the community through its clinical program and advocacy initiatives. Register Here: https://lnkd.in/gcVzgrGR

Corinne Grgas, a nurse practitioner and committee member for the MDA Nashville Muscle Team Gala -- taking place on September 17 at Marathon Music Works -- shares her story of being diagnosed with #neuromuscular disease and how support for Muscular Dystrophy Association's mission is making a big impact in the lives of people living with the conditions. Thank you WKRN News 2 for spotlighting this upcoming event to raise funds for research, care, and advocacy for our community. Donations and sponsorships, tickets for the event are available here: https://lnkd.in/egEQVh9e)

We are proud to congratulate Morgan Roth, Chief Marketing Officer for Muscular Dystrophy Association for being recognized by Ragan Communications and PR Daily on the list of Top Women in Marketing Class of 2024! This award celebrates the groundbreaking achievements of women who have set new standards in the marketing world through innovative, high-impact work across advertising and marketing. Morgan continues to use her expertise, network and influence to tackle pressing industry challenges, engage new audiences and amplify the voices that often go unheard. We proudly celebrate her remarkable work and accomplishments. Congrats, Morgan!

Sumukha Terakanambi, a Muscular Dystrophy Association Ambassador living with #Duchenne #MuscularDystrophy (DMD), shared his experience at the 14th Annual Disability Justice Seminar, emphasizing the critical need for accessible voting. As we approach the upcoming election, join MDA’s Access the Vote campaign to ensure everyone in the neuromuscular disease community can make their voice heard. Your voice is your power. Make your plan to vote today at MDA.org/Vote. #MDA #Advocacy #AccessTheVote

The Muscular Dystrophy Association has an incredible legacy of bringing communities together and fundraising over #LaborDayWeekend. Ahead of this holiday weekend, we’re always excited about participating in the hundreds of #FillTheBoot events our lifesaving #FireFighters are leading to support our mission. This year, we’re also reflecting on an astounding 70 years of partnership between the International Association of Fire Fighters (IAFF) and the Muscular Dystrophy Association. Thanks to all of you who have contributed to #FillTheBoot, fire fighters have raised over $700 million for MDA’s mission – and we would not have been able to make the breakthroughs in genetic disease we see today without such heroic partners. Thank you to everyone at #IAFF, for your dedication and compassion. Here's to our continued journey of making an impact and continuing this momentum for our mission. #MuscularDystrophy #ALS #Neuromuscular   

Join us on August 29, September 5, and September 12 for this in-depth learning series all about advancements and considerations in gene therapy across neuromuscular diseases. This multi-day series is free for people living with neuromuscular disease and their caregivers. Presentations from experts in the field include: Craig Zaidman, MD and Natalie Goedecker CPNP, Washington University School of Medicine in St. Louis, Barry Byrne, MD, PhD UF Health, Michael Storey, PharmD from Nationwide Children's Hospital, Paul Melmeyer, VP of Public Policy and Advocacy at Muscular Dystrophy Association, and Aravindhan Veerapandiyan, MD from Arkansas Children's. Each presentation will also offer a live Q&A. REGISTER HERE:  https://lnkd.in/gv-AG34k #MDA #GeneTherapy #MuscularDystrophy #Neuromuscular #Duchenne #SpinalMuscularAtrophy #SMA

September marks the start of National Muscular Dystrophy Awareness Month! Throughout the month, MDA will host various events & initiatives to advance research, care, and advocacy, all in support of empowering the neuromuscular disease community to live longer, more independent lives. You can make a difference—support the ‘30 Days of Strength’ campaign by donating today: MDA.org/30days #MuscularDystrophyAwareness #30DaysOfStrength

The 2025 MDA Clinical & Scientific Conference prospectus is now available, and registration is open! Join us from March 16-19 in Dallas, Texas for this unique opportunity to engage with the brightest minds and advance the future of #neuromuscular research and treatment. Early-Bird registration ends December 31, 2024. Learn more & register today: https://lnkd.in/ex3pQutW While this is a technical conference geared toward medical and scientific professionals, individuals in the neuromuscular community who are registered with #MDA and would like to view meeting presentations in real time may sign up for virtual attendance at no cost. Discounted fees are available for in-person attendance at the patient/caregiver rate until allotted spaces are filled. #MDAconference