🙏Thank you to this year’s Mile Marker Sponsors for The Progeria Research Foundation's 23rd Annual International Race for Research! 🎽To register for the race taking place on Saturday, September 14 go to: https://bit.ly/23rdRFR 💙For more details about the race go to: http://prfroadrace.org/ #raceforresearch #runforcharity #Peabody #raredisease #Progeria
The Progeria Research Foundation
Non-profit Organizations
Peabody, MA 887 followers
For the Children. For the Cure. OUR VISION: A world in which every child with Progeria is cured.
Über uns
The mission of The Progeria Research Foundation is to discover treatments and the cure for Progeria and its aging-related disorders, including heart disease. Together with caring, dedicated board members and other generous volunteers, The Progeria Research Foundation was created to raise awareness, educate and help the families, their doctors, researchers and the general public about Hutchinson-Gilford Progeria Syndrome. In addition, PRF funds medical research and runs research-related programs specifically aimed at finding additional treatments and cure for this syndrome.
- Website
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http://progeriaresearch.org/
External link for The Progeria Research Foundation
- Industrie
- Non-profit Organizations
- Größe des Unternehmens
- 11-50 Mitarbeiter
- Hauptsitz
- Peabody, MA
- Typ
- Nonprofit
- Gegründet
- 1999
- Spezialitäten
- Research, Rare Disease, and Fundraising
Standorte
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Primäre
PO Box 3453
Peabody, MA 01961-3453, US
Employees at The Progeria Research Foundation
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Audrey Gordon
President and Executive Director at The Progeria Research Foundation
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Barbara Natke
Business Development - Portfolio Management - Strategy
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Eleanor Maillie
Communications Manager at The Progeria Research Foundation
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Scott Berns
President and CEO National Institute for Children’s Health Quality
Aktualisierungen
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🙏Thank you to this year’s Starting Banner Sponsors Leslie Gordon and Scott Berns and Barbara Gordon – For Burt ❤️ and Finish Banner Sponsor Debbie Mendelson Ponn for The Progeria Research Foundation's 23rd Annual International Race for Research! 💙 To register for the race taking place on Saturday, September 14 go to: https://bit.ly/23rdRFR 💙 For more details about the race go to: http://prfroadrace.org/ #raceforresearch #runforcharity #Peabody #raredisease #Progeria
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🙏Thank you again to our Lead Sponsor North Shore Bank, A Co-operative Bank or supporting The Progeria Research Foundation’s 23rd Annual International Race for Research on Saturday, September 14❣️ 📹Enjoy this video interview between PRF President & Executive Director Audrey Gordon and NSB’s Marketing Guy Chris Pesce. https://lnkd.in/dnVjycQE 🎽REGISTER HERE: https://bit.ly/23rdRFR 🎽MORE DETAILS HERE: prfroadrace.org #Progeria #raceforresearch #runforcharity #Peabody
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🙏Thank you to this year’s Dog Watering Station 🐾 Sponsors for The Progeria Research Foundation's 23rd Annual International Race for Research! 💙 To register for the race go to: https://bit.ly/23rdRFR 💙 For more details about the race go to: http://prfroadrace.org/ #raceforresearch #runforcharity #Peabody #raredisease
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🙏Thank you to our amazing Team PRF Falmouth Road Race, Inc. runners for running their hearts ❤️ out yesterday! And 🙏 thank you to our fantastic Falmouth donors who have supported them along their race journey ❣️ Together our team has raised over $21,000 to date to help us to the finish line 🏁 to the CURE for #Progeria. 🎽But we’re not finished yet – donations will be accepted through Monday, September 30: https://bit.ly/FRR2024PRF #FalmouthRoadRace #NumbersForNonprofits #findthecure #Progeria
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👟👟 RACE DAY IS HERE 👟👟 Team PRF is getting geared up for their 7-mile run on this beautiful summer day. Thank you so much to all those who have supported us so far. We’re so close to our fundraising goal! 💙 Make a Donation: https://bit.ly/FRR2024PRF 💙 BIB NUMBERS 🎽 Britny Andersen - 11930 🎽 Elizabeth Broden Arciprete - 11933 🎽 Harrison Arciprete - 11931 🎽 Craig Bonaceto - 11932 🎽 Meg Ennis - 11934 🎽 Alexander (Alex) Finn - 11935 🎽 Michael Gillespie - 11936 🎽 Andrew Hong - 11937 🎽 Erin Hussey - 11938 🎽 Eric Kappotis - 11939 🎽 Emma MacAllister - 11940 🎽 John McFadden - 12425 🎽 Amanda Mcgrath - 11941 🎽 Paul Michienzie - 11942 🎽 Katrina Vassallo - 619 🎽 James (Jamie) Welsh - 12426 #FalmouthRoadRace #NumbersForNonprofits #findthecure #Progeria
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❤️ HAPPY NATIONAL NONPROFIT DAY! ❤️ This is the day we recognize nonprofit organizations’ efforts to improve the communities they serve. Here is a brief history on The Progeria Research Foundation (PRF). 💙 The concept for PRF began in 1998 when Sam Berns, the son of two physicians, Drs. Leslie Gordon and Scott Berns, was diagnosed with Progeria. Faced with an absence of medical information, resources, and no centralized place for families to turn to for help, they created PRF along with their family, to find the cause, treatments and cure for #Progeria. 💙 Within four years of its founding, the PRF Genetics Consortium discovered the Progeria gene, a collaboration led by Dr. Francis Collins, former Director of the National Institute of Health & Social Sciences (NIH). Over the course of PRF’s 25-year history, this rare condition has gone from obscurity to 🌎 worldwide awareness. We are making extraordinary progress, from no research to a life-extending FDA-approved treatment, development of genetic and other drug therapies that hold great promise as a future CURE, and have established healthcare guidelines - all of which give these special children longer, healthier lives. 💙 But we can’t do any of this without your support – 🙏 please become a monthly donor TODAY! https://bit.ly/PRFDonation 💙 Learn more: https://lnkd.in/ej3erefy #NationalNonprofitDay #monthlydonor #fundraising #raredisease
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🎽 It’s #FalmouthFriday! This is Ian Kelly’s 10th time running Falmouth Road Race, Inc. for Team PRF. Ian will be participating virtually this weekend. Amazing, 🙏thank you Ian!!!! “It is a privilege to again run the Falmouth Road Race for Team PRF! The impact that Sam, Leslie, and Scott have had on children with Progeria and their families is incredible, and it is an honor to run alongside others who have been inspired by getting to know them. Go Team PRF, and good luck to all those participating!” ~Ian 💙 🎽 Help Ian reach his Falmouth fundraising goal: https://bit.ly/FRRIanK #FalmouthRoadRace #NumbersForNonprofits #findthecure #Progeria
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🙏Thank you to North Shore Bank, A Co-operative Bank the Lead Sponsor for The Progeria Research Foundation's 23rd Annual International Race for Research on Saturday, September 14! This is North Shore Bank’s 21st year of supporting the race! WOW❣️ 🎽To register for the race go to: https://bit.ly/23rdRFR 🎽For more details about the race go to: http://prfroadrace.org/ #Progeria #raceforresearch #runforcharity #Peabody
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👟 Register by TONIGHT AT 11:59PM ET for early-bird pricing for The Progeria Research Foundation's 23rd Annual International Race for Research on Saturday, September 14. Pricing goes up TOMORRROW, WEDNESDAY, 8/14 so register NOW and save! 🎽Registering early also ensures you get a t-shirt. 👟 To register for the race go to: https://bit.ly/23rdRFR 👟 For more details about the race including registration pricing, go to: http://prfroadrace.org/ #Progeria #raceforresearch #runforcharity #Peabody